Frequently Asked Question
Requesting support to fight against Motor Neurone Disease(MND) and Crohn's Diseases
Last Updated 3 months ago
From CKC Admin Desk:
We have received a legitimate request for assistance from one of our CKC supporters. After verifying the documents, we certify that the request is valid. Please find below the request from Sachin who is impacted with MND and Crohn's disease.
Hi Sir,
I am Sachin, age 30 years, residing in Mangalore Karnataka. I graduated with a Bachelor of Computer Application from SDM College Mangalore. 5 years back I was working as a web designer in a startup company but as my disease progressed and lost movement in my hands and legs with breathing difficulty I had to leave my job and currently I am not in a movement to do any work.
I was diagnosed with Motor neuron disease at the age of 7 years It started with a foot drop in the lower limb and gradually it progressed and later affected my hands and legs movement which made it difficult to do my daily activities where I have to depend on my parents and caretaker to do all of the activities including feeding and personal hygiene.
When I was 22 years age I had respiratory failure and got admitted I was told that Motor neurone disease progressed and affected my breathing muscles which led to lung failure and currently I am depending upon a BiPap ventilator and oxygen concentrator for breathing. Currently, I am in the final stage of Motor neurone disease and I am Bedridden I am not in a movement to do any job and earn my living. Because of this, I am facing serious financial issues to manage my medical expenses and other personal experience expenses. Recently 2 years back I was also diagnosed with Crohn's disease which is an inflammatory bowel disease that causes heavy rectal bleeding because of inflammation in the intestine It has no cure and medication is going on to control the symptoms. It's been a great task to face my life with these two diseases.
Currently, I am facing the expense of rupees almost 10000 rupees every month to manage my medicine expenses and caretaker.
It would be very helpful if someone with good-hearted people came forward to help and support people like me financially to manage my daily expenses as I am not in the movement to do any job and earn my living. I am completely bedridden with no movement in my hands and legs and having an issue with my lungs and intestines.
I also need a laptop as an assistive device that will help in my daily life.
I am hoping with a lot of expectation that someone with a good heart will come forward to support my life and donate something to support my life. Thank you in advance. Looking forward to a positive response.
Best regards,
Sachin N
+91 8147655436
s/o C.K Narayana #23-12-1088,chithra kutira,
jaihind road,Monkeystand 2nd cross, Marnamikatta,
Mangalore, Karnataka , INDIA– 575001
Attachments:
More about tests and certificates can be found in Google drive
https://drive.google.com/drive/folders/1BEIyvauC7ccsyJu_tJroqK9TDjXShvHc?usp=sharing
We have just donated AUD 200/- for this noble cause. Thank you all members of the club for the continued support for our great motive "Playing for a Cause". If you wish to donate directly, please find below Sachin's bank and Google pay details. If you can send the receipt to [email protected], we will extend your membership to the equivalent period (Please include your nickname & receipt).
Account Name: Mr. Sachin N
Account Number: 00000031045105831
IFSC: SBIN0017762
We have received a legitimate request for assistance from one of our CKC supporters. After verifying the documents, we certify that the request is valid. Please find below the request from Sachin who is impacted with MND and Crohn's disease.
Hi Sir,
I am Sachin, age 30 years, residing in Mangalore Karnataka. I graduated with a Bachelor of Computer Application from SDM College Mangalore. 5 years back I was working as a web designer in a startup company but as my disease progressed and lost movement in my hands and legs with breathing difficulty I had to leave my job and currently I am not in a movement to do any work.
I was diagnosed with Motor neuron disease at the age of 7 years It started with a foot drop in the lower limb and gradually it progressed and later affected my hands and legs movement which made it difficult to do my daily activities where I have to depend on my parents and caretaker to do all of the activities including feeding and personal hygiene.
When I was 22 years age I had respiratory failure and got admitted I was told that Motor neurone disease progressed and affected my breathing muscles which led to lung failure and currently I am depending upon a BiPap ventilator and oxygen concentrator for breathing. Currently, I am in the final stage of Motor neurone disease and I am Bedridden I am not in a movement to do any job and earn my living. Because of this, I am facing serious financial issues to manage my medical expenses and other personal experience expenses. Recently 2 years back I was also diagnosed with Crohn's disease which is an inflammatory bowel disease that causes heavy rectal bleeding because of inflammation in the intestine It has no cure and medication is going on to control the symptoms. It's been a great task to face my life with these two diseases.
Currently, I am facing the expense of rupees almost 10000 rupees every month to manage my medicine expenses and caretaker.
It would be very helpful if someone with good-hearted people came forward to help and support people like me financially to manage my daily expenses as I am not in the movement to do any job and earn my living. I am completely bedridden with no movement in my hands and legs and having an issue with my lungs and intestines.
I also need a laptop as an assistive device that will help in my daily life.
I am hoping with a lot of expectation that someone with a good heart will come forward to support my life and donate something to support my life. Thank you in advance. Looking forward to a positive response.
Best regards,
Sachin N
+91 8147655436
s/o C.K Narayana #23-12-1088,chithra kutira,
jaihind road,Monkeystand 2nd cross, Marnamikatta,
Mangalore, Karnataka , INDIA– 575001
Attachments:
More about tests and certificates can be found in Google drive
https://drive.google.com/drive/folders/1BEIyvauC7ccsyJu_tJroqK9TDjXShvHc?usp=sharing
We have just donated AUD 200/- for this noble cause. Thank you all members of the club for the continued support for our great motive "Playing for a Cause". If you wish to donate directly, please find below Sachin's bank and Google pay details. If you can send the receipt to [email protected], we will extend your membership to the equivalent period (Please include your nickname & receipt).
Account Name: Mr. Sachin N
Account Number: 00000031045105831
IFSC: SBIN0017762